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Dame Ellen Pinsent School

Dame Ellen Pinsent School

Useful Links

General

  • Contact  - WE ARE CONTACT, THE CHARITY FOR FAMILIES WITH DISABLED CHILDREN

    We support families with the best possible guidance and information. We bring families together to support each other. And we help families to campaign, volunteer and fundraise to improve life for themselves and others.  https://contact.org.uk/

  • Cerebra - Families where a child has a brain condition face challenges every day. Just to learn, play, make friends, enjoy and experience the world can feel difficult, even impossible. But we don’t believe there is any challenge that can’t be over come. http://www.cerebra.org.uk

ADHD

  • Adders British hosted online support group for adult and children with Attention Deficit Disorder. Includes articles and chat rooms.

Autism and Aspergers

  • The Autism Trust Our objective is simple: to create a future with purpose for children everywhere with autism. The concept is based on providing employment and training opportunities for young adults with autism.

  • The Curly Hair Project The curly hair project (CHP) aims to help women and girls with ASD and their neurotypical loved ones communicate and understand each other better.

  • Cycle South Birmingham Cycling tuition for children with Autism Spectrum Disorder, Aspergers, Dyspraxia and Hypermobility. We want to help children with additional needs demonstrate to society their abilities, not their limitations.

Chromosome Disorders

  • Unique Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.

Communication Difficulties

  • Afasic It can be hard for parents who are worried about their child’s speech, language or communication development to find the help, information and support they need.

  • Communication Matters Communication Matters is a UK-wide organisation committed to supporting people of all ages who find communication difficult because they have little or no clear speech.

  • SpeechTeach Our site has been developed to provide speech therapy resources for parents and professionals supporting children with speech and learning difficulties for example dyspraxia, apraxia and autism. Other areas of articulation, literacy and late speaking are also covered together with links and reviews for other websites specialising in these areas.

  • Communicating with an Autistic Child: A Parent’s Guide - Communicating with an autistic child can pose many challenges. Once parents begin to understand the signs and conditions of their individual child’s autism, they can begin to develop a plan for communicating with their child.

Downs Syndrome

  • The Downs Heart Group UK charity which offers support and information to families who have a member with Down's Syndrome and congenital heart defects.

  • National Association for Downs Syndrome U.S site. A not-for-profit organization, founded in Chicago in 1961 by parents of children with Down syndrome who felt a need to create a better environment and bring about understanding and acceptance of people with Down syndrome

Dyspraxia

  • Dyspraxia Foundation The Dyspraxia Foundation is a country Wide charity, founded in 1987 as the Dyspraxia Trust by two mothers who met at Great Ormond Street Hospital for Sick Children.

Epilepsy

  • Epilepsy Action We exist to improve the lives of everyone affected by epilepsy.

  • Epilepsy Society Epilepsy Society’s vision is a full life for everyone affected by epilepsy. Why not connect with us today? Together we can make a real difference.

Mental Health

  • MindEd for Families An online resource providing evidence based advice and information for family members or caregivers concerned about their child’s mental health.The site has been funded by the Department for Education and offers advice on all aspects of children's mental health, ages 0-18. This half of the site is aimed at families but is useful for everyone who is involved with children.

Prader-Willi Syndrome

  • Prader Willi Syndrome Association UK The PWSA UK website has been designed to meet your information and resource needs about Prader-Willi Syndrome and the Prader-Willi Syndrome Association UK - whether you are someone with PWS, a parent, professional, or just want to know more.

 

http://www.musictherapyworks.co.uk/

We currently have a music therapist, Alex Lowman, working with us a day and a half a week. Alex works with either small groups or individual children to build up their emotional resilience, communication skills, concentration or turn taking skills. Follow the link above to find out more information about the service. 

Contact for Families with Disabilities

  •  Blue Badge Scheme - This is the biggest change to the Blue Badge scheme since the 1970s. It comes after an eight-week consultation, which received over 6,000 responses.As a result of the consultation, automatic entitlement to the Blue Badge will be extended to those in England who score 10 points under the Personal Independence Payment (PIP) mobility test of being "unable to undertake any journey because it would cause overwhelming psychological distress to the claimant".   Those who get PIP mobility for other reasons will not qualify for a Blue Badge automatically, but they may still be able to qualify for a Blue Badge on alternative grounds if they fall into one of three groups.
  • Behaviour that challenges - TIPS TO MANAGE YOUR CHILD'S BEHAVIOUR Many young children have emotional outbursts, but behaviour can become challenging when it happens frequently or repetitively or it is harmful to the child, the parent or other people.

    All children are different so there isn't one answer. Some of the tips in the link might help you find a solution that works for your child.

  • To order your copy of 'The helpful guide for families with disabled children' click on the link attached. 

  • Carers allowance factsheet - PDF File attached  below.

  • Claiming Disability Living Allowance for children - PDF File attached  below.